My wife and I are a team in so many ways, and it hit me today that her diagnosis with Myasthenia Gravis and me as a Caregiver are a lot like a golfer and his caddy.
You might watch golf on TV and view the heroics and resulting accolades by and for the player but trust me, the caddy has been busting their butts learning the course, getting yardages, noticing the wind, the elevation how the ball is laying in what type of grass and is always keenly aware of the players current state of mind. Sometimes even giving a bit of false info considering how much adrenaline or over confidence the player might be feeling in the moment.
In the end the player makes the call on what shot to hit regardless of the caddy's info. And the player has to pay the ultimate price for the decision. Right or wrong, it's up to them.
And so it is with caregiving. You've got to be rather hypervigilant and understand the spoon theory of the daily allotted energy stores available for the patient, knowing from experience they'll pay later for what's spent now. You suggest, prod and cajole but in the end the patient is going to do what they're going to do and your care will not waiver. You'll be there to support the result.
As to results... Here's a link to a video of Anita on WebMD speaking about advocacy for the MG Community. https://www.webmd.com/brain/video/mg-friends-advocate?preroll=n
I'm so proud of her I could pop. Please share the video far and wide.
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