As the world stops turning for no one, ours has certainly skewed it's axis and the wobble effect is casting ripples across the previously normal of our lives.
We've been to the ER three times in 30 days and I've watched my wife transform from a healthy 61 year old vibrant woman to what on the outside appeared to be a 91 year old decrepit old lady.
Bringing us to her amazing bounce back to a new normal at 61 again. It's been a roller coaster ride and she alludes to with her brilliant writing skills on her blog The Silver Lining .
I'd encourage you to follow along as she describes what dealing with Myasthenia Gravis is like from within, on her blog.
For me, I've been dealing with getting letters from a doctor to support the legitimate need to have cancelled a flight Anita was due to take but was obviously unable. Filing for an appeal of a denial of coverage by the insurance company because incompetent resident neurologist students failed to annotate a positive response to medication. Acquiring needed health support items like a bipap breathing machine, oxygen tanks for the house and travel to appointments, emergency resuscitation equipment, prescriptions and making sure they're administered on time. Keeping healthy food available in a mechanically soft diet. Emergency information cards for EMT's, prescription lists, allergies, known diagnoses and following up on requested referrals to more competent neurologists.
And I can finally exhale.
Amid all the turmoil of the past six weeks, Anita and I have grabbed a hold of each other like we're floating in an eddy that's getting stronger as it nears the edge of a water fall. There were times when both of us considered the worst. But we mustered the strength, with the help of a couple of competent doctors to find our way to dry land again and have been catching our breath ever since. Our precious, precious breaths, always together, our breaths.
Our eyes have spoken volumes when there was insufficient muscle power available to draw enough air to speak. We've texted and emailed and shed quiet tears and little chuckles, trying not to waste life sustaining energy. One such exchange via text message demonstrates the love story beautifully.
But if you're convinced and committed, come hell or high water...
No matter what life throws at you...
You never doubt,
you never fear.
You just endure.
The first day date out for anything other than a doctor's appointment.
She's the love of my life.
She makes my heart flutter.
No comments:
Post a Comment