Tuesday, October 30, 2018

Learning by Observing - What You See is What You Get

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I'm thinking back to how I learned to do things. I watched sports on TV and then went and participated by joining little league baseball and football teams. I don't remember the coaches actually teaching us anything. They'd make us exercise and practice and improve the basic skills we already had. We learned to play by watching it on TV and seeing the older kids play before we were old enough. 

I played some basketball but didn't have the height to compete and there were no little league teams. I excelled at ping pong and the only experience I had with it was watching and being fascinated by the Chinese' dominance in the Olympic games.

I played golf because I had to caddy for my Dad while he honed the skills to his passion. We watched it on television. We had golf magazines around the house and a tarp in the garage to hit balls into in the winter when the local courses were closed.

So, we're born with a skill set like good hand and eye coordination, athleticism and we pursue what opportunities exist in the areas where we have interest. We learn on our own through trial and error. We get better with practice. We build confidence as we hone our skills.

As I aged, it seemed my peers grew into young men and the girls into young women while I remained like a child. I was a late bloomer physically. So I found my self excelling at individual sports like ping pong and golf where I placed high in local competitions.

Well as we all age, there comes a time when we begin to explore our sexuality and again, no one teaches us about it. We learn by observing and through experimentation. Our curiosity leads us to find what we like and the feedback we receive lets us know what we're already good at and what we need to practice. I think we all want positive feedback. We want to be good at things. We want to be desired. We want to feel good about ourselves.

Lately, I've been wanting to read more than usual, which is very little. The only other time I really wanted to read was when I was incarcerated. I wanted and needed to be somewhere else. Books helped me with that. At times I'd have three books at a time. One I was finishing up, one I was just getting into and one on deck. I read more in an eighteen month period than all my life prior and since combined. As well as listened to a few radio programs that for me, achieved a similar escape.

So why am I wanting to read more now? 

I often find myself contemplating and reflecting on life as I am busy with other things like cutting the grass or cooking. Often I awaken from a dream and with a song in my head that's relative to the dream.


This morning the song was "Wrecking Ball."



The dream was about my first wife, whom for thirty six years I thought was the mother of my one and only child, but through DNA this year found it to not be so. 

As I went through my morning routine of feeding the cats, turning on the lights, fireplace and coffeemaker I realized that she, my first wife had been pregnant three times in the span of two years. None of them mine.

She was three months pregnant (by a friend of mine) when I married her . When that child was about one and a half years old, she was pregnant again but had an abortion (claiming it was mine but it was a completely different guy from the first, a friend of her's). This tossed our marriage into a tailspin and we separated for six months. When she got pregnant by another guy (third guy), I'd had enough and we divorced.

I woke up feeling like a victim. And I thought, who grows up wanting to be a victim? How'd I become that?

I began thinking of other things that happened over the course of my life and I saw a pattern of being victimized. Why? I thought about them and could not find the nexus for the individual events that would warrant revenge or anything of that nature.

What I discovered, the epiphany was that, just as I wrote about at the beginning of this post, I learned to be a victim by observing.

I was raised by a victim.

We all identify with one of our parents more than the other. According to Dr. Phil the same gender parent is the biggest influence in our lives. I believe I was more of a Mama's boy.

Had I identified more with my father I likely would have been an abuser. (I was and I abused me)

She was a victim. I'd seen her with black eyes and bruises. I'd watched her cry and listened to the violence on the other side of the bedroom door. I'd been a victim of the violence at my father's hands and witnessed a sibling suffer similar who then in turn victimized me with his dysfunctional frustrations mentally and physically.

There are things that have never left my memory that I've always wondered why they happened to me at the hands of what I considered friends and family.

I have to conclude that as much as my golf swing was identical to my dad's due to keen observation, that my ability to be victimized was honed in a similar fashion by keen observation of my mother.

There's another saying by Dr. Phil that past behavior is the best indicator of future behavior. 

I'm currently reading Heavy - An American Memoir

In this powerful and provocative memoir, genre-bending essayist and novelist Kiese Laymon explores what the weight of a lifetime of secrets, lies, and deception does to a black body, a black family, and a nation teetering on the brink of moral collapse.




But we grow up and we realize how foolish we've been and at some point we have to adjust our behavior if we want better results.

And at this revelation, do we burn the bridges? Do we forgive and forget? How do we move on when there are triggers and pain that lurk with further observations. 

But I'll save that topic for a future post.



Sunday, September 30, 2018

2v1 Predictability.

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I've previously blogged about a couple of days while in the Marine Corps titled "Bad day part one" and "Bad day part two."  Today's title, "2v1 Imagine" is about MG. Myasthenia Gravis, an incurable autoimmune disease which my wife is diagnosed with.
Bottom line, with MG you need 2 down/restful days to have one full/eventful day, at best.

From the outside looking in, a living with / caretaker views Anita as being fully capable of handling her own affairs. And if there were no other option, she'd certainly find a way.

MG sufferers like any other battling some limiting force, find a way.

It's not necessarily debilitating but it is requiring of major adjustment.

There is something you want to plan to attend. You look at the calendar and you begin to understand with a bit of experience with MG that you must employ a 2v1 tactic.

You have to plan on a day of rest before and a day of rest after the date you plan a day out and about.

Now imagine you have the need to work, to earn income to put food on the table and pay the rent.

We're not in that situation, yet many are.

I'm sharing what Anita is sharing.

We are learning. This is a journey.

It'd be nice to believe that this is the new normal.

But we really don't know and it may be that we'll never know.

Yet all we really seek is  predictability.




Friday, September 21, 2018

Time after Time a True Friend


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I'm cutting the grass today, all the racket blocks the varying thoughts in my bipolar mind and I'm able to just let thoughts flow in a cohesive manner. Ralph Moore had and evidently still has an impact on my life.

He introduced me to Jesus and though contact has been rare over the course of the last 32 years, the influence is still there. Because I trust Ralph Moore. I trust the Jesus in him.

I'd been married three times prior and would have it no other way than what I thought was the formula for the right way for a change than to fly from the east cost to Hawaii to be married by Ralph to my new love (celebrating 13 years together 11 married and life has never been better.)

My beliefs took a 180. I just can't handle the OT God killing, the discrepancies in the NT and today's political evangelical climate, so I tossed the baby out with the bath water. I always admitted Jesus changed my life I just didn't buy the deity. I see it as a stepping stone. Being set free from the system the church has become in my eyes. I see secular views and the rule of law better serving society.

This year I've found out through DNA my 36 year old one and only son is not my son. He was fathered by a friend. We maintain the friendship.

My wife has been diagnosed with an incurable rare autoimmune disease (Myasthenia Gravis). We visited the ER three times in a month and I had to administer CPR to her for 20 minutes on our living room floor while twice I watched her eyes roll back in her head, her lips turn blue and thoughts of losing her flooded my mind.

My wife and Ralph are the best examples of Jesus I've ever encountered. Christ in them are my anchors. I can remember verbatim, sermons from 30+ years ago by Ralph. My wife has allowed me the room to toss my beliefs even though they were strong in bringing us together, having formed a water purification ministry to Ghana West Africa early on.

But my love and admiration for her and hers for me carries on. It strengthens as we appreciate and reciprocate and wholly accept one another.

I don't know or believe that Jesus is God. But I remember a sermon where Ralph said that we were marked, a deposit had been made and one where he spoke of an anchor for boats off the coast near the Rock of Gibraltar, using the metaphor for Jesus and how he wanted Hope Chapel to be like that anchor. I do believe him still. That the deposit made, regardless of what I accept today as truth or fact, is intact. That it would never be withdrawn in my doubt.

Thank you Ralph, even though some times (often) I scoff at your endless efforts to plant churches in this mad mad world. I believe you're what you've wanted to be. A vessel of an anchor of Hope. A steadfast Influence. A true Friend.



2 Corinthians 1:21-22
Now He who establishes us with you in Christ and anointed us is God, who also sealed us and gave us the Spirit in our hearts as a pledge.  




Friday, August 24, 2018

Tests of Love, what's in your heart?


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What's the ultimate test to determine how much you value a relationship?

I know from experience that taking a long car ride early in a relationship can be a good test I'd highly recommend for everybody. Fortunately my experience was a positive one.

What about infidelity? I've been on both sides of that coin previously as well. You can make it through either way but in the long run, karma's a bitch.

What about strained finances? We didn't have two nickles to rub together when we met.

Long distance? We did that for four years.

Jealousy?

Sex?

Ex?

There's certainly a plethora of issues that can crop up along the way in a relationship.

And if you've taken the vows, for richer - for poorer, in sickness and in health... how much do they mean, really?

How far will you go with taking over the parental position in caring for your aging parent(s)? With they share your home? Will you change their diapers?

What about your spouse? That closest of relationships can flip like a light switch with a tragic life event.

Let me tell you, initially you'll just react. You can't grasp the big picture so you do what's needed in the moment, moment to moment until the pieces of the puzzle start revealing the scenery beyond the front porch.

When you're able to exhale and close your eyes and relax just enough to let some emotion flow... your mind can swirl and feel overwhelmed.

So you ask yourself, is this what I signed up for?
Yes.

Is this what I hoped for?
No.

Is this fair?
Doesn't matter, life isn't fair.

And you make a decision. The same one when you decided to go all in. There's no turning back. You've stepped over the line.
You will not back up
give up or
shut up.

You are in LOVE. And through LOVE you will give until you feel like you can't give any more and you will dig deeper to find the energy to press on. You will do this over and over again, growing further in LOVE than you ever imagined. You'll never make the journey alone, not while breath cycles through your lungs and blood pumps through your veins.

When the LOVE of your life doesn't have the strength, you will do it all. You will be their strength.

And when the light appears at the end of the tunnel, on this journey to a new normal, you'll recharge and ride nearer your destination without slip sliding away.

Tragedy brings new levels of existence. We adapt, we over come. New plateaus, places previously  thought unobtainable. Places never even conceived, beyond wonderful.

It's difficult to think words like, "I'm glad we've had this struggle."  We've come through things not uncommon to many and we've rolled right on down the track towards one another. This one has brought us even closer. A new perspective. Not a full paradigm shift, but a deeper almost eternal thing. As though it was but a reflection and now I see fully. Face to face, with the greatest... LOVE.



8Love never fails. But where there are prophecies, they will cease; where there are tongues, they will be stilled; where there is knowledge, it will pass away. 9For we know in part and we prophesy in part, 10but when completeness comes, what is in part disappears. 11When I was a child, I talked like a child, I thought like a child, I reasoned like a child. When I became a man, I put the ways of childhood behind me. 12For now we see only a reflection as in a mirror; then we shall see face to face. Now I know in part; then I shall know fully, even as I am fully known.
13And now these three remain: faith, hope and love. But the greatest of these is Love.




Monday, August 13, 2018

Life in the key of A

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I've traveled with Anita west to east from Hawaii to Ghana and north to south from Alaska to the Caribbean.

It's definitely been an Adventure.

This journey with Myasthenia Gravis is quite the journey with Anita.
I've been the Kite and she's been the String keeping me tethered, grounded and calm.

Now I function to rein her in so as not to over do and cause an MG crisis. She can get to feeling good, a most welcome change to the past month of complete anguish over physical struggles and nearly depleted hope. But the curtain has been lifted and with light at the end of the tunnel, she's raring to go, when able.

It's a battlefield of the mind. As Jill Bolte Taylor explains, we're responsible for the energy we bring into a room. Attitude is everything.

Optimistic can do attitudes believe and hope for a better future while Accepting the current circumstance.

Acknowledging that the road is not going to be smooth, but navigable nonetheless.

All the Answers are not readily Apparent but we can embrace the mystery and cling to one another through the valleys and celebrate the bright sunny days.

There are times when you'll feel overwhelmed like an Avalanche is Attacking you from every direction. Your emotions can wash over you like tidal waves and your thoughts can turn dark.

It can be quite difficult observing the love of your life endure such an onslaught. The once vibrant strength waning under it's pressure. Wearing you down and stealing your hope.

It can be, but the proper response is to fight it. Refuse to give it a foothold. Step into the ring and fight for the weakened one. Stand in the way, encourage, deflect the negativity.

Ask not what your doctors can do for you. Ask what you can do for your doctors.

Act or behave your way to success.

There is nothing you can not Achieve.

There is no thing that is good that is not Accessible.

Anita Tarlton is the most wonderful human I've ever known. She is dealing with limitations to features that are at the very essence of her.

She's always been stoic and now she's emotional.
She's always been a communicator and now it fatigues her.
She's always been crafty and now it saps her strength.
She's always been an eater and now chewing is laborious.
She's always been adventurous and now she's slowed down.
She's always been a singer and now she's a whisperer.

Her words, her Ability to write in a style that takes you there has not diminished.
Her loving heart has not disappeared.
Her Appreciation of others has not dissipated.
Her life is Adapting to a new normal.

She is my All. She is the one I Admire most. I lover her Always in All ways.


She is, my wonderful life, in the key of A
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Friday, August 3, 2018

MG a Tragedy or a Love story

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As the world stops turning for no one, ours has certainly skewed it's axis and the wobble effect is casting ripples across the previously normal of our lives.

We've been to the ER three times in 30 days and I've watched my wife transform from a healthy 61 year old vibrant woman to what on the outside appeared to be a 91 year old decrepit old lady.

Bringing us to her amazing bounce back to a new normal at 61 again. It's been a roller coaster ride and she alludes to with her brilliant writing skills on her blog The Silver Lining .

I'd encourage you to follow along as she describes what dealing with Myasthenia Gravis is like from within, on her blog.

For me, I've been dealing with getting letters from a doctor to support the legitimate need to have cancelled a flight Anita was due to take but was obviously unable. Filing for an appeal of a denial of coverage by the insurance company because incompetent resident neurologist students failed to annotate a positive response to medication. Acquiring needed health support items like a bipap breathing machine, oxygen tanks for the house and travel to appointments, emergency resuscitation equipment, prescriptions and making sure they're administered on time. Keeping healthy food available in a mechanically soft diet. Emergency information cards for EMT's, prescription lists, allergies, known diagnoses and following up on requested referrals to more competent neurologists.

And I can finally exhale.

Amid all the turmoil of the past six weeks, Anita and I have grabbed a hold of each other like we're floating in an eddy that's getting stronger as it nears the edge of a water fall. There were times when both of us considered the worst. But we mustered the strength, with the help of a couple of competent doctors to find our way to dry land again and have been catching our breath ever since. Our precious, precious breaths, always together, our breaths.

Our eyes have spoken volumes when there was insufficient muscle power available to draw enough air to speak. We've texted and emailed and shed quiet tears and little chuckles, trying not to waste life sustaining energy.  One such exchange via text message demonstrates the love story beautifully.


I've seen people wearing shirts that reflected their support for things like sports teams. I always ask them to, "show me your ink." We can take a shirt or jacket off and they wear out and get tossed. I don't find that particularly convincing.

But if you're convinced and committed, come hell or high water...



No matter what life throws at you...

You never doubt, 
you never fear. 
You just endure.

The first day date out for anything other than a doctor's appointment.


She's the love of my life.
She makes my heart flutter.


Friday, July 27, 2018

I said I do and I meant it

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It's been an adventurous month with three trips to the Emergency Room with my wife in the clutches of a life threatening Myasthenia Gravis Crisis. It's like watching a loved one drowning, gasping for air.  The last incident found us on the living room floor together with her face pale, lips turning blue and eyes rolling back in her head while I'm trying to resuscitate her. She regained consciousness and faded again and further efforts brought her back again.

It was an incredible adrenaline rush and I beat the emergency squad to the hospital by 12 minutes. It has also turned out to be quite a bonding event. She's extremely thankful and appreciative and I know she'd do the same for me. We live by appreciate and reciprocate. I told her she'd have to fight harder than that to get away from me.

It reminds me of a scene from one of my favorite movies, The Matrix, in which Neo saves Trinity.

Please take a moment to watch this video clip.




To me, the bullet that hits Trinity is the disease of Myasthenia Gravis trying to take the life of my wife and on my watch it's going to face a battle with me. It may weaken her but it's got more than her to contend with.
She is indeed an MG Warrior 


and we're thankful for the team of Dr's helping in their areas of expertise, the many friends who've offered help and kindnesses along the way. The various medications and finally making it to the best MG Clinic in the country at Duke University has brought a psychological victory that is relieving symptoms immediately. There's light at the end of the tunnel.

I've been in a state of hypervigilance for Anita's every breath, every swallow. I'm feeling I can relax a bit. We're learning the signs and symptoms of when to slow down and that there will be good and bad days.

But together we'll make it to a new normal. 
A reasonable quality of life.

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On a personal note, I looked in the mirror last night after washing my face and for the first time in decades, I appreciated what I saw. I feel like I'm seeing what I've wanted to be. I feel like I was tested and I've demonstrated my mettle. It feels good.

met·tle
ˈmedl/
noun
  1. a person's ability to cope well with difficulties or to face a demanding situation in a spirited and resilient way.

    "the team showed their true mettle in the second half"

    synonyms:spiritfortitude, strength of character, moral fiber, steeldeterminationresolveresolutionbackbonegrit, true grit, courage, courageousness, braveryvalorfearlessnessdaring;

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I said "I DO" and I meant it. In the good times and bad. In sickness and health, for richer for poorer. I was absolutely euphoric when the Pastor said I present you newlyweds David and Anita.

I'd sleep on the floor like a dog next to Anita with one ear open for her breathing and one eye open for anything that can harm her. I can't find sufficient words to describe all that she is to me.
I know how she was feeling when we met and I know how she feels now and that, makes me feel successful and happy in a healthy way.




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